What's My Name Again?
April 26th of 2009 I had my first recognized seizure, while not a grand mal seizure. It was still pretty scary. After some back and forth with my doctors a CT scan was finally ordered. As I was coming out of the CT machine a Doctor looked down at me and said, "I don't want to scare you but, you have a large aggressive mass on the right side of your brain." Don't want to scare me huh? Yeah ok, no big deal. Well here's the thing, at the time I was the mother of a 5 year old little boy. I don't have time for this nonsense! "Ok, well what are we going to do about it?" Being that this was done at a Navy facility they didn't have the resources to handle my case. So they tossed me in an ambulance and sent me off to Savannah GA. Long story short, Doctors in Savannah confirmed the presence of a large tumor and declared it inoperable. Off to MUSC in Charleston, SC. There a surgeon said he was confident he could get "Eehh, maybe 25% with a high risk of physical deficits" Um, hard pass. Thanks.
Its at this point things start to get a little fuzzy for me. My mom, with the help of her super brainy Dr. and nurse friends, did some research and came upon Dr. Allan H. Friedman, co-director of Duke's Brain Tumor Center in Raleigh NC. Dr. Friedman had successfully operated on then Senator Edward Kennedy. After a brief battle with my insurance company, a referral was placed and we were headed for Duke!
I can't recall how many MRIs I had there but it seems like there were several before we met with the Doctor. Upon meeting with Dr. Friedman he assured us that he was absolutely certain he could get at least 60% of my tumor. Followed up with radiation and chemotherapy to kill the remaining tumor. We scheduled my surgery ASAP, within two weeks we were headed back to Duke. This time for surgery. If I remember correctly(which I'm probably not), my surgery lasted approximately 8 hours and required 3 units of blood. Dr. Friedman successfully removed 64% of the tumor that he then diagnosed as an Anaplastic Astrocytoma. AKA, a really nasty tumor. If you're out to catch a nasty form of cancer, this is the one to catch. After recovering from surgery I began a 5 day a week, 6 week radiation treatment plan in addition to a year long oral chemotherapy regimen. Fast forward to September(I think it was September anyway)2010. My then husband, myself and now 6 year old son traveled to Duke for my regular check up. It was at this visit they told us the cancer was gone!! Praise the Lord its gone!
Today its been almost 9 years and I'm STILL cancer free!! That is almost unheard of with my diagnosis!! I'll never be in the clear and I still have significant cognitive deficits but I'm alive and have a pretty darn good quality of life! Had we chosen another hospital, the likelihood of my survival, with minimal deficits would not have been what it was at Duke. Duke's Brain Tumor Center is constantly at work developing and studying new and more effective ways to treat the many different types of brain cancer. Unfortunately, its not cheap. So today I'm asking my friends and family to donate as little or as much as you're able towards this cause! Not only is Duke leading the way in brain tumor research, through donations they're able to offer their patients and survivors grants and scholarships to help us continue living our lives to the fullest! Please consider donating any amount towards this cause that means so very much to me and my family!